Monday, December 24, 2007
I really hope everyone is happy...it is so hard when you have so many people to buy for. I really just tried to concentrate on Aves, and I still feel like I didn't get her enough. There is this CUTE Little Einstein set at Target that I know she would LOVE to have, but it was 40 bucks, we are pretty much BROKE so I had to refrain from buying it today.
We went to Morgantown Mall yesterday with Grammy and Aunt Penny. I really LOVE that mall, it was my first time there and it isn't far from here at all! Aves was really good, she walked because we forgot her stroller. She did well, only had to carry her a few times. I was really surprised she didn't try to run away.
They had a huge play area for the kids, so we let her go in it. It was really sad to see her so afraid of other children. She cried and wanted to leave but we stuck it out and eventually she got a little used to it and walked around, played with some of the stuff. She generally looked scared ( though Aunt Penny didn't want us saying that ;p ). Makes me wonder what she is going to do in pre school...other kids WILL be there, I don't want her to be somewhere she is afraid of .
Well I will be back with pictures from our Christmas Eve later!!
Friday, December 14, 2007
Tuesday, December 11, 2007
Just to clarify I am not mad, it is just funny how if I had never heard of Autism, or had to deal with a speech delay It wouldn't of bothered me. I love when people pay attention to Ava. Maybe I should make that my opportunity to raise awareness for Autism.
We haven't had speech in two weeks. The first week she canceled then I had to cancel, and then it snowed and she couldn't make it. Ava is doing really good, especially when we tell her to say things..she will say it. I remember them telling me around 2 1/2 -3 years of age is when that window opens and that she would have a language explosion. Well it's not an explosion but it is coming. I get really sad when she IS trying to say something that is MORE than one word and it comes out all wrong. Example...Night night Dada. Comes out night night GUNK GUNK..the last part through her nose. Then she will do it again and again. And she WAS saying dada..but now its gaga. So much to worry about. I often wonder if there is something more going on in that brain of hers.
Tuesday, December 4, 2007
Her little voice is just so sweet. I have to tell you the story of todays "mama". I was outside messing with Christmas decorations, and I must of left the door open a little. Next thing I know I hear "MAMA MAMA MAMA" And I look up and she is peeking out the door with the biggest smile on her face. Oh she just melts my heart. It was so cute, I wish I would of had my camera.
Needless to say I am SO in love with my daughter!
Leaving you with some Christmas pictures...
Friday, November 23, 2007
Wednesday, November 14, 2007
I realize this skill will probably come around, i mean a few months ago she didn't know what " find your shoes, or get me a diaper, or throw this away meant. " The latter being VERY new! I told her to throw her juice box away and she did!
My niece and nephew were here this weekend, and I can TELL she wants to play with them. She likes to look at them, but when they come near her she holds up her hands in front of her like STOP! Brady likes to hug her and she shrugs him off. Pains me to see, but it is so good to have them around. They need to come over more often!!
Leave you with some recent pictures, nothing great...the sun hasnt been out in days and I need an external flash!
They are all looking...yay for lollis!
Poor Aves was not having it!
Friday, November 2, 2007
1. All gone (aaa gawn) with sign
2. More ( nore ) with sign
3. Please ( teese ) with sign and while touching her lips with palm of hand
5. Penny ( ninny)
6. Bye Bye ( with gesture ) then blows a kiss.
8. Broke ( boke)
9. Bee ( Loves bee’s and bugs )
10. Hot ( when looking at the space heater )
11. Night night ( niiii niiii )
13. Plane (peen ) umm lol ya
14. Stuck ( cawk) lol I didn’t want to spell it the other way but you get the point hehe
15. Cookie ( cook cook )
16. Balloon ( boon)
18. No ( And even will shake her head sometimes )
She will Mooo for a cow and most recently said oink oink and meow meow for piggy and kitty. We are really trying to get her to say yes and no to answer us, she really doesn’t get yes and no questions just yet. BUT she has nodded her head yes when asked to say yes. AND there was a sign with cheese on it at wal-mart and she looked up at it and said tteese. I was LiKE OMG ! She won’t even eat cheese , how does she KNOW that is cheese? We have also decided that sound she makes out of her nose is a type of stim. We have done so much research on it and finally came across some information that pointed it to a stim. She does it A LOT, but we really can’t redirect that stim because she doesn’t understand when we tell her to “open mouth” or “talk through your mouth”. It really isn’t harmful right now anyways.
Thursday, November 1, 2007
I was all ready to call 911~ I panicked like a true first time mommy. She now has a nice black eye and turning greenish and yellow. sigh!
Trick or Treat went MUCH better. She WORE her bee costume for me. I was so happy. She really doesn't like it because of the hood, but we put it on right when we walked out the door and she was free to run and have fun . She was a trooper. You can see her black eye too!
Sunday, October 14, 2007
These meltdowns are coming more and more often.
This evening I was on the phone with a friend ( hi tammy) and Ava just starts screaming at the top of her lungs, poor Tammys ear. Just one scream after another.
And they wonder why the 5 min trip to the grocery store is like a vacation to me!
Wednesday, October 10, 2007
It REALLY is helpful and more comfortable to do in your own home to see if your concerns may be valid. I have been doing this test with Ava every few months to see her improvements. She actually has gotten a worse score now that she IS talking more, but I honestly think it would of been off the charts if she was the same child 6 months ago and starting to talk. She scores at the end of moderate PDD-NOS.
I was so happy that Ava has had a couple great therapy sessions this week..far cry from last week when she behaved so badly and was acting as if she was rebelling agaist them...poor miss K took the brunt of it . This week was much better, Less talking through her nose..more opening of her mouth . Yay! I still long for the day when she just burts out some big huge sentence...or even something much more simplier..Like "I love you, Mommy"....or even Love you mommy....love mommy....or if she would just point to her eyes, her heart, then to me like ive been tying to teach her for months. I KNOW she loves me, but it would be nice to hear. And if not ever, thank goodness parents have that instinct and just KNOW their children love them just by the look in their eyes, their touch, their smiles, and how their eyes light up, and the awesome kisses i get in the morning.
People tend to think of Autism as ONE set standard..it is a spectrum, a huge one at that. I think thats one of the most important thing to realize. it is HUGE..form a child rocking in the corner and non verbal, totally disconnected from the world..to a mildly affected child with a minor speech delay and some quirks. I am not sure where Ava falls, she is NOT severe and I thank my lucky stars that she is able to somewhat get her point across to me, and tries really hard to be a part of this crazy world we live in.
It's flu shot season! Many brands of the flu shot still contain in excess of the EPA's allowable mercury exposure for a 500-lb. individual. Mercury is the second most neurotoxic substance on the planet. Exposure can lead to irreversible developmental and/or neurological damage. Mercury has NOT been removed from all brands of flu, Rhogam, diptheria or tetanus vaccines. If you are contemplating a flu shot this season, please print this chart and take it to your doctor.http://www.vaccinesafety.edu/thi-table.htmRequest a mercury-free flu shot... they are available!!If your doctor insists that it's safe to be injected with between 4 (large adults) - 20(small children) times the EPA's allowable amount of mercury in the form of thimerosal, a toxic preservative that has been banned for years from paint and other medical products due to its severe neurological, autoimmune and gastrointestinal effects, I would respectfully suggest finding a new doctor.
Have a safe and autism-free autumn!
Monday, October 8, 2007
I know that Ava is progressing and doing better, I am so proud of her. I do think I let it cloud my judgement because when I am around other children, her peers, I can see the big difference.
We went to my sisters house this past weekend, and her cousin is 7 months older than her. She did a lot better with them than before..she would just scream until we took her home. This time she was very interested in their toys. Just not them. She ignores them , acts like they aren't even there. And if i would ask her to hand them something she would totally look away and hand it to them..make every effort not to look at them. Breaks my heart.
But I have to keep on pushing on. I love her with every ounce of my heart. I have bene reading the postive stories, stories of recovery and that is what I am going to focus on.
Also , if anyone has any idea where to buy Autism Lapels in bulk for cheap, please let me know.
I will leave you with some fun park pictures!
Tuesday, September 25, 2007
Here are some pictures
Monday, September 24, 2007
Here are a few of her new things she is saying :
The MAJOR one : Mmmmmm Good! LOL it is too cute! She said it out of the blue one day while eating ice cream ( YUP ICe cream! )
Another is "moon" more like moooooo but she knows what the moon is and will point to it and say "moo mooo moon" over and over again.
And "bye bye" is really clear now. She will Wave and say it! How cool is that??
And one other major thing is she is trying to say More while signing it. She will sign More and say something . Which is really big. We have been wanting her to change from using the signs to using the signs and using a word with them.
I am so very proud of her! You have no clue! It has been such a long 6 months.
At our last IFSP meeting we talked about her going to school..can you believe it? We are all thinking she will need to go to a pre school for special needs children, but are hoping and praying that by kindergarten she will be able to go mainstream, maybe with an aide. I get really sick to my stomach when i think about her not being mainstreamed. I would love her either way, but as a parent you want the most "normal" typical thing for your child. I guess we have a long way to go before we get to that point, I am jumping WAY ahead!
Saturday, September 1, 2007
THis is taken From : http://www.kidshealth.org/kid/health_problems/brain/autism.html
What Does Autism Mean?
Autism (say: aw-tih-zum) causes kids to experience the world differently from the way most other kids do. It's hard for kids with autism to talk with other people and express themselves using words. Kids who have autism usually keep to themselves and many can't communicate without special help.
They also may react to what's going on around them in unusual ways. Normal sounds may really bother someone with autism — so much so that the person covers his or her ears. Being touched, even in a gentle way, may feel uncomfortable.
Kids with autism often can't make connections that other kids make easily. For example, when someone smiles, you know the smiling person is happy or being friendly. But a kid with autism may have trouble connecting that smile with the person's happy feelings.
A kid who has autism also has trouble linking words with their meanings. Imagine trying to understand what your mom is saying if you didn't know what her words really mean. It is doubly frustrating then if a kid can't come up with the right words to express his or her own thoughts.
Autism causes kids to act in unusual ways. They might flap their hands, say certain words over and over, have temper tantrums, or play only with one particular toy. Most kids with autism don't like changes in routines. They like to stay on a schedule that is always the same. They also may insist that their toys or other objects be arranged a certain way and get upset if these items are moved or disturbed.
If someone has autism, his or her brain has trouble with an important job: making sense of the world. Every day, your brain interprets the sights, sounds, smells, and other sensations that you experience. If your brain couldn't help you understand these things, you would have trouble functioning, talking, going to school, and doing other everyday stuff. Kids can be mildly affected by autism, so that they only have a little trouble in life, or they can be very affected, so that they need a lot of help.
What Causes Autism?
Autism affects about 1 in every 150 kids, but no one knows what causes it. Some scientists think that some kids might be more likely to get autism because it or similar disorders run in their families. Knowing the exact cause of autism is hard because the human brain is very complicated.
The brain contains over 100 billion nerve cells called neurons (say: nur-ahns). Each neuron may have hundreds or thousands of connections to other nerve cells in the brain and body. The connections (which are made by releasing neurotransmitters) let different neurons in different areas of the brain — areas that help you see, feel, move, remember, and much more — work together.
For some reason, some of the cells and connections in the brain of a kid with autism — especially those that affect communication, emotions, and senses — don't develop properly or get damaged. Scientists are still trying to understand how and why this happens.
What Do Doctors Do?
Figuring out if a kid has autism can be difficult. A parent is usually the first to suspect that something is wrong. Maybe the kid is old enough to speak but doesn't, doesn't seem interested in people, or behaves in other unusual ways. But autism isn't the only problem that can cause these kinds of symptoms. For example, kids who have hearing problems may have trouble speaking, too.
Usually, lab tests and other medical tests are normal in kids with autism, but doctors may do them to make sure the kid doesn't have other problems. These medical tests may include blood and urine tests, a hearing exam, an EEG (a test to measure brain waves), and an MRI (a picture that shows the structure of the brain). Intelligence (IQ) tests also may be done.
Often, specialists work together as a team to figure out what is wrong. The team might include a pediatrician, a pediatric neurologist, a pediatric developmentalist, a child psychiatrist, a child psychologist, speech and language therapists, and others. The team members study how the child plays, learns, communicates, and behaves. The team listens carefully to what parents have noticed, too. Using the information they've gathered, doctors can decide whether a child has autism or another problem.
How Is Autism Treated?
There is no cure for autism, but doctors, therapists, and special teachers can help kids with autism overcome or adjust to many difficulties. The earlier a kid starts treatment for autism, the better.
Different kids need different kinds of help, but learning how to communicate is always an important first step. Spoken language can be hard for kids with autism to learn. Most understand words better by seeing them, so therapists teach them how to communicate by pointing or using pictures or sign language. That makes learning other things easier, and eventually, many kids with autism learn to talk.
Therapists also help kids learn social skills, such as how to greet people, wait for a turn, and follow directions. Some kids need special help with living skills (like brushing teeth or making a bed). Others have trouble sitting still or controlling their tempers and need therapy to help them control their behavior. Some kids take medications to help their moods and behavior, but there's no medicine for autism.
Students with mild autism sometimes can go to regular school. But most kids with autism need calmer, more orderly surroundings. They also need teachers trained to understand the problems they have with communicating and learning. They may learn at home or in special classes at public or private schools.
Living With AutismSome kids with mild autism will grow up and be able to live on their own. Those with more serious problems will always need some kind of help. But all kids with autism have brighter futures when they have the support and understanding of doctors, teachers, caregivers, parents, brothers, sisters, and friends
Thursday, August 23, 2007
I took matters into my own hands and called our local Early Intervention program. A couple weeks later they sent out a team to evaluate Ava. She scored incredibly low in all areas, and only 9 months in communication when she was 18 months old. She was basically globally delayed. She qualified for Speech, Occupational therapy and Special Instruction. I wanted to know WHAT was wrong with my baby. I made an appt to see a developmental pediatrician in Childrens Hospital. There was a waiting list and in that time she started therapy. It took a couple of months but all the sudden we seen changes. God Bless those angels ..her therapists . She started to pick up sign language, and after being afraid that she was NOT going to pick up any all the sudden she learned 2. Open and More. Oh my goodness it was a miracle..my baby was FINALLY communicating with me. By the time her appt came around she was making better eye contact and had about 6 different signs. Her sleeping was still very poor and we were still working on her sensory issues, but she had made progress. It wasnt enough. She scored poorly on her MCHAT and they gave her the dx of Autism. Even though i KNEW it...it was so hard to hear. I broke down into tears, hated the world, cursed the higher power for giving my baby Autism. It was a low point.
Now that Ava has been in Early Intervention for 6 months she has made A TON of progress. I am still hopefull ( no, not denial ) that her dx will somehow go away, that one day she won't carry a label. She has about 10 signs , and is starting to repeat words. Lots of words, she is up to about 15. She is saying "ball" randomly which is AWESOME for us. We overcame a ton of sensory issues. She still has a poor attention span but we are working on it. Her therapists are our life savers. Sometimes I dread the long hours and days of therapy, but then I see all that it has done for her. I am a HUGE believer in Early intervetion. Please if you think something is wrong with your baby, dont be afraid to make that call. IT doesn't hurt at all. She will probably not be going to a regular preschool, but one for children with learning disabilities/Autism/Special needs. But I will NOT give up on hoping and praying that she will attend a regular main streamed kindergarten.
I hope you enjoy!