I hope everyone had a great Thanksgiving! We had a nice day, except I have a really bad flu/cold. It is still lingering on and I feel horrible! But I do have so much to be Thankful for.
I will update more with pictures from our Thanksgiving later.
Friday, November 23, 2007
Wednesday, November 14, 2007
Ups and downs
As I write this post I just feel like crying. I am not sure what is wrong with me. Today Ava's ST gave us a number for another doctor down in Pittsburgh, we need to get a new eval so we can get TSS and hopefully ABA started. We thought maybe we could get by with not doing this until May when she would need a new eval anyways, but we all agreed we need it now. While her language is starting to come around, her problem solving and cognitive thinking is still lagging behind. Example...you take your child out of the car in a parking lot, tell them to stay put for that brief moment while you shut the door and they know to stand there, Ava will not know and will dart off. She doesn't understand concepts like that. I can't tell her to stay by mommy, or hold my hand.
I realize this skill will probably come around, i mean a few months ago she didn't know what " find your shoes, or get me a diaper, or throw this away meant. " The latter being VERY new! I told her to throw her juice box away and she did!
My niece and nephew were here this weekend, and I can TELL she wants to play with them. She likes to look at them, but when they come near her she holds up her hands in front of her like STOP! Brady likes to hug her and she shrugs him off. Pains me to see, but it is so good to have them around. They need to come over more often!!
Leave you with some recent pictures, nothing great...the sun hasnt been out in days and I need an external flash!
They are all looking...yay for lollis!
Poor Aves was not having it!
Our pup!
I realize this skill will probably come around, i mean a few months ago she didn't know what " find your shoes, or get me a diaper, or throw this away meant. " The latter being VERY new! I told her to throw her juice box away and she did!
My niece and nephew were here this weekend, and I can TELL she wants to play with them. She likes to look at them, but when they come near her she holds up her hands in front of her like STOP! Brady likes to hug her and she shrugs him off. Pains me to see, but it is so good to have them around. They need to come over more often!!
Leave you with some recent pictures, nothing great...the sun hasnt been out in days and I need an external flash!
They are all looking...yay for lollis!
Poor Aves was not having it!
Our pup!
Friday, November 2, 2007
Ava's words
Ava’s words
Spontaneous words
1. All gone (aaa gawn) with sign
2. More ( nore ) with sign
3. Please ( teese ) with sign and while touching her lips with palm of hand
4. Nanny
5. Penny ( ninny)
6. Bye Bye ( with gesture ) then blows a kiss.
7. Book
8. Broke ( boke)
9. Bee ( Loves bee’s and bugs )
10. Hot ( when looking at the space heater )
11. Night night ( niiii niiii )
12. Moon
13. Plane (peen ) umm lol ya
14. Stuck ( cawk) lol I didn’t want to spell it the other way but you get the point hehe
15. Cookie ( cook cook )
16. Balloon ( boon)
17. Baby
18. No ( And even will shake her head sometimes )
She will Mooo for a cow and most recently said oink oink and meow meow for piggy and kitty. We are really trying to get her to say yes and no to answer us, she really doesn’t get yes and no questions just yet. BUT she has nodded her head yes when asked to say yes. AND there was a sign with cheese on it at wal-mart and she looked up at it and said tteese. I was LiKE OMG ! She won’t even eat cheese , how does she KNOW that is cheese? We have also decided that sound she makes out of her nose is a type of stim. We have done so much research on it and finally came across some information that pointed it to a stim. She does it A LOT, but we really can’t redirect that stim because she doesn’t understand when we tell her to “open mouth” or “talk through your mouth”. It really isn’t harmful right now anyways.
Thursday, November 1, 2007
Fall pictures
We took Ava to Ohio Pyle, we had a great time! She loved to be free and run of course.
Here are some of the pictures.
And we also went to the park....getting all of our outside time in before the flakes start flying!
Here are some of the pictures.
And we also went to the park....getting all of our outside time in before the flakes start flying!
Three Halloweens down!
I can't believe it was Ava's THIRD Halloween already! Time sure does fly. We had a pretty good Halloween, despite an awful time at the Dance Studios Halloween party. It was just way too overstimulating for her. She seemed very happy but, that Mommy instinct in me KNEW that something was just off. I tried to pick her up for the group picture, and she wouldn't let me..she wouldn't look at me...slapped and hit me and screamed. To everyone else she looked like a bad child, but really I know her sensors were just overwhelmed. She can cope very well in our house, but outside of it I guess is a different story. Especially something on such a large scale. Don't get me wrong, she was laughing and so forth but there was no control and she wouldn't look at any of the kids or anything. She fell and busted her lip and blood was running out of her mouth and she didn't even seem to care! We left in tears. Then we learned the mouth boo boo was nothing compared as to what happened next! Ava got her FIRST bad Boo boo that night. Daddy stuck her in the bathtub and she slipped and fell against the side of the tub. Scared me to death!
I was all ready to call 911~ I panicked like a true first time mommy. She now has a nice black eye and turning greenish and yellow. sigh!
Trick or Treat went MUCH better. She WORE her bee costume for me. I was so happy. She really doesn't like it because of the hood, but we put it on right when we walked out the door and she was free to run and have fun . She was a trooper. You can see her black eye too!
I was all ready to call 911~ I panicked like a true first time mommy. She now has a nice black eye and turning greenish and yellow. sigh!
Trick or Treat went MUCH better. She WORE her bee costume for me. I was so happy. She really doesn't like it because of the hood, but we put it on right when we walked out the door and she was free to run and have fun . She was a trooper. You can see her black eye too!
Sunday, October 14, 2007
Meltdowns
Ahh! I know a lot of this is normal two year old behavior...I also know that it is exasperated by her Autism. Anyways, this morning her Aunt Penny, Grammy and I went to this Halloween store, which had no carts and I did not bring the stroller. So I am holding her and of course she wants down, she wanted her Aunt to hold her but Penny has a broken foot and on crutches so that wasn't working out well. Sooo I am struggling to hold on to her and she slips out of my arms and melts to the floor. Seriously, she let everything just go limp and to my dismay started making snow angels right in the middle of the aisle..then scootching on her back down the aisle. I would pick her up she would scream and just go LIMP. She didn't want to walk, she just wanted to lay on the floor. UGH! I am the mom who is all about behaving in public, HUGE on manners, and really I don't take this kinda stuff well. Everyone was staring at the two year old using her back to sweep up all the dirt in the aisle while her mother frantically tries to make her stop. Then she wants to run....... run run run. PLEASE Ava, I BEGGED and pleaded with her. I finally get her in my arms and I am NOT letting go ...she kicked and screamed and she WON..how can a two year old WIN? thank goodness for the squishy ugly frog that caught her attention..aunt penny bought it for her and off we went...to wal-mart. Where are carts that her little butt was strapped into.
These meltdowns are coming more and more often.
This evening I was on the phone with a friend ( hi tammy) and Ava just starts screaming at the top of her lungs, poor Tammys ear. Just one scream after another.
And they wonder why the 5 min trip to the grocery store is like a vacation to me!
These meltdowns are coming more and more often.
This evening I was on the phone with a friend ( hi tammy) and Ava just starts screaming at the top of her lungs, poor Tammys ear. Just one scream after another.
And they wonder why the 5 min trip to the grocery store is like a vacation to me!
Wednesday, October 10, 2007
A website and random banter
First I wanted to post this helpful link to follow if you suspect your child may be on the Autism Spectrum. http://www.childbrain.com/pddassess.html
It REALLY is helpful and more comfortable to do in your own home to see if your concerns may be valid. I have been doing this test with Ava every few months to see her improvements. She actually has gotten a worse score now that she IS talking more, but I honestly think it would of been off the charts if she was the same child 6 months ago and starting to talk. She scores at the end of moderate PDD-NOS.
I was so happy that Ava has had a couple great therapy sessions this week..far cry from last week when she behaved so badly and was acting as if she was rebelling agaist them...poor miss K took the brunt of it . This week was much better, Less talking through her nose..more opening of her mouth . Yay! I still long for the day when she just burts out some big huge sentence...or even something much more simplier..Like "I love you, Mommy"....or even Love you mommy....love mommy....or if she would just point to her eyes, her heart, then to me like ive been tying to teach her for months. I KNOW she loves me, but it would be nice to hear. And if not ever, thank goodness parents have that instinct and just KNOW their children love them just by the look in their eyes, their touch, their smiles, and how their eyes light up, and the awesome kisses i get in the morning.
People tend to think of Autism as ONE set standard..it is a spectrum, a huge one at that. I think thats one of the most important thing to realize. it is HUGE..form a child rocking in the corner and non verbal, totally disconnected from the world..to a mildly affected child with a minor speech delay and some quirks. I am not sure where Ava falls, she is NOT severe and I thank my lucky stars that she is able to somewhat get her point across to me, and tries really hard to be a part of this crazy world we live in.
It REALLY is helpful and more comfortable to do in your own home to see if your concerns may be valid. I have been doing this test with Ava every few months to see her improvements. She actually has gotten a worse score now that she IS talking more, but I honestly think it would of been off the charts if she was the same child 6 months ago and starting to talk. She scores at the end of moderate PDD-NOS.
I was so happy that Ava has had a couple great therapy sessions this week..far cry from last week when she behaved so badly and was acting as if she was rebelling agaist them...poor miss K took the brunt of it . This week was much better, Less talking through her nose..more opening of her mouth . Yay! I still long for the day when she just burts out some big huge sentence...or even something much more simplier..Like "I love you, Mommy"....or even Love you mommy....love mommy....or if she would just point to her eyes, her heart, then to me like ive been tying to teach her for months. I KNOW she loves me, but it would be nice to hear. And if not ever, thank goodness parents have that instinct and just KNOW their children love them just by the look in their eyes, their touch, their smiles, and how their eyes light up, and the awesome kisses i get in the morning.
People tend to think of Autism as ONE set standard..it is a spectrum, a huge one at that. I think thats one of the most important thing to realize. it is HUGE..form a child rocking in the corner and non verbal, totally disconnected from the world..to a mildly affected child with a minor speech delay and some quirks. I am not sure where Ava falls, she is NOT severe and I thank my lucky stars that she is able to somewhat get her point across to me, and tries really hard to be a part of this crazy world we live in.
Subscribe to:
Posts (Atom)